Southeast
Florida
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AWARD WINNING ORIGINAL DREAMGIRL
JENNIFER HOLLIDAY TO PERFORM AT LUPUS
FOUNDATION BUTTERFLY BALL
Nov 26
Anne Bright and Stacie Weisman Chair the
"Night of Dreams and Illusions"
(Delray
Beach, FL) - November 19, 2007- The
Lupus Foundation of America,
Southeast Florida Chapter proudly
announces that Grammy and Tony Award
Winning vocalist Jennifer Holliday will
headline this years annual Butterfly
Ball on Saturday, February 23 at Mar-A-Lago
Club in Palm Beach.
Holliday, best known as the original
Dreamgirl and her iconic Grammy winning
R&B/Pop hit "And I am Telling You I'm
Not Going" is a legendary Broadway
singer and actress. She landed her first
role on Broadway at age 19 in Your Arms
Too Short To Box With God. Shortly
thereafter, at the age of 21 she won the
role of Effie Melody White in the Tony
winning Dreamgirls. Holliday went on to
win the Tony Award for Best Actress, won
the Drama Desk and Theater World awards
and a Grammy for the recorded version of
her signature song. Her second Grammy
came three years later for her rendition
of Duke Ellington's Come Sunday.
Mrs. Anne Bright and Ms. Stacie Weisman
will serve as chairs of a night aptly
entitled "A Night of Dreams and
Illusions." Activities at the gala
include a dynamic silent auction, live
music by the Stephen Chase Band, food
and libations and additional
entertainment surprises throughout the
evening. Southern Wine and Spirits is
the Presenting Sponsor. Mr. and Mrs.
Mark B. Templeton and Citrix Systems,
Inc. are Grand Benefactor sponsors.
Additional sponsors include Ms. Mary
Porter, Mrs. Lorraine Thomas, Mr. and
Mrs. Martin O'Boyle, Mr. and Mrs.
Gilbert Spencer, Mr. and Mrs. Leigh Gove
and the Daphne Seybolt Culpeper
Foundation.
This black-tie ball is the
organization's largest fund-raiser of
the year with all proceeds staying in
South Florida. Tickets for the Ball are
$600. For more information, to become a
sponsor or to make reservations for the
Ball, call the Lupus Foundation at
561-279-8606.
Proceeds from the gala directly benefit
the Lupus Foundation of America,
Southeast Florida Chapter, a
not-for-profit autonomous corporation
affiliated with the Lupus Foundation of
America. This chapter, founded in
1978, serves Brevard, Broward, Collier,
Hendry, Indian River, Martin,
Miami/Dade, Monroe, Okeechobee, Palm
Beach, and St. Lucie counties. The
chapter is dedicated to improving the
lives of persons who suffer from lupus
in South Florida by providing counseling
and referral, support groups,
professional and patient education and
training, outreach, public information,
advocacy, and support of research. Visit
www.lupusfl.org
for more
information.
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OVER 30,000 DIAGNOSED WITH LUPUS IN SOUTH
FLORIDA
Lupus is more prevalent than AIDS, sickle
cell, cerebral palsy, multiple sclerosis and
cystic fibrosis combined
NEARLY 30,000 DIAGNOSED IN
SOUTH FLORIDA
Lupus Foundation of America Southeast
Florida Chapter
Engaging Community To Help Find A Cure
During
October - National Lupus Awareness
Month
While most women are aware of
the signs and health risks of breast cancer
and heart disease, relatively few are aware
of another significant health problem that
strikes mostly young women between the ages
of 15 and 45. The disease is lupus. October
is National Lupus Awareness Month and the
Lupus Foundation of America Southeast
Florida Chapter is undertaking a regional
campaign to educate the public and health
professionals about lupus and its impact on
individuals, families and society. Lupus is
incurable and is taking over women's health
at an astonishing pace. Lupus deaths have
increased 61% since 1980.
Lupus is a chronic (lifelong)
disease in which the immune system, for
unknown reasons, becomes out of balance,
causing inflammation and serious tissue
damage to virtually any organ in the body.
Even though approximately 1.5 million
Americans have lupus, two-thirds of
Americans report they are unaware of lupus
or its potentially disabling and
life-threatening health effects. People of
color are at greatest risk for developing
lupus. The disease is two to three times
more common among African Americans,
Hispanics, Asians and Native Americans than
among Caucasians. What is most troubling
about the lack of awareness of lupus is that
early recognition, diagnosis and treatment
of lupus often can prevent serious
consequences, such as heart disease, stroke,
kidney failure, disability or even, death.
Nationally, nearly 2 million
have been diagnosed with lupus. Closer to
home, the diagnosis is on the rise with
nearly 30,000 in Southeast Florida, which is
over 33% of the states diagnosed population.
Over 6,100 patients have been diagnosed in
Palm Beach County; over 8,700 in Broward and
a staggering 12,000 in Miami - Dade County.
The problem is, however, that lupus is
difficult to detect because many initial
symptoms of the disease often are dismissed
or go misdiagnosed. Because the disease
progresses most often over time, it is not
uncommon for people with lupus to suffer
several years before doctors can make an
accurate diagnosis. Currently, there is no
single laboratory test that can conclusively
determine whether a person has lupus.
Diagnosis is usually made by a careful
review of a person's entire medical history,
coupled with an analysis of the results
obtained in routine laboratory tests and
some specialized tests related to immune
status. The Lupus Foundation of America,
Southeast Florida Chapter's website includes
a short questionnaire that can help
individuals determine whether they need to
consult with a doctor about lupus. Visit,
www.lupusfl.org to download the
questionnaire.
The fight to find a cure is
aggressively underway in Southeast Florida
as the local Lupus Foundation of America
chapter, the second largest in the country
is planning several walks and fundraising
events to raise money and awareness to fight
this debilitating disease.
"One in 185 people have been
diagnosed with lupus and right now, lupus is
winning," said Joshua Estrin, President and
CEO of the Lupus Foundation, SE Florida
Chapter. "We are engaging the local
community to open their eyes and take the
time to learn about lupus as eventually
someone they know either has or will develop
lupus."
Other services are also in
place regionally to assist those desiring
information on lupus. A Patient Navigator is
now available Wednesdays from 9:30 AM to
12:30 PM and Thursdays, 1 PM to 7 PM to
answer questions regarding the disease,
supply names of doctors who specialize in
treating lupus or provide information to
patients or family members that have general
questions. Twelve regional support groups
located throughout South Florida are also
meeting regularly to assist patients and
their families in coping with lupus. For a
complete list of support group meeting times
and locations and to learn more about lupus,
visit www.lupusfl.org.
The Lupus Foundation of
America, Southeast Florida Chapter, a
not-for-profit autonomous corporation
affiliated with the Lupus Foundation of
America. This chapter, founded in 1978,
serves Brevard, Broward, Collier, Hendry,
Indian River, Martin, Miami/Dade, Monroe,
Okeechobee, Palm Beach, and St. Lucie
counties. The chapter is dedicated to
improving the lives of persons who suffer
from lupus in South Florida by providing
counseling and referral, support groups,
professional and patient education and
training, outreach, public information,
advocacy and support of research. For more
information, call 561-279-8606 or
800-339-0586 or visit
www.lupusfl.org.
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Sweet Leaf Tea
Partners With Lupus Foundation
Clayton Christopher
and David Smith,
creators of Sweet
Leaf Tea
Provided by: Sweet
Leaf Tea
Sweet Leaf Tea
Partners With Lupus Foundation
Named Official
Beverage Sponsor for Broward and
Palm Beach County Lupus Walks
BOCA RATON, FL
(September 19, 2007)
- Sweet Leaf Tea has partnered
with the Lupus Foundation as the
official beverage sponsor of
Walk for Lupus Now, to take
place in October in Delray and
Davie. Sweet Leaf Tea will be
providing their southern sweet
tea, diet and unsweetened iced
tea flavors to walkers and
supporters at both walks in
South Florida, to benefit the
Lupus Foundation of America,
Southeast Florida Chapter.
The Walk for
Lupus Now, scheduled for October
14, will start at 8 AM at Nova
Southeastern University in
Davie. The Lady Chablis, famous
for the book and movie
Midnight in the Garden of Good
and Evil, is the Grand
Marshall. The Delray walk will
take place on October 27 at 8 AM
at Anchor Park. Leslie Hunt,
American Idol Season 6
finalist, will Grand Marshall
and participate in the walk.
"We are very
proud to support lupus and
awareness across all the
communities we serve," says
Michelle Weisblatt, Director of
Marketing for Sweet Leaf Tea.
"It is an honor to be a part of
an event to help those who have
been affected by this disease."
We are honored
and grateful to have entered
into this collaboration with
Sweet Leaf Tea, remarks Joshua
Estrin - CEO of the Lupus
Foundation of America, Southeast
Florida Chapter. It is rare to
find a company such as Sweet
Leaf so willing to give and so
supportive of our efforts. They
personify the core philosophy
that embodies social
philanthropy and we are thrilled
to have them as part of the
lupus family. Their generosity
will save lives!"
The Lupus
Foundation of America, Southeast
Florida Chapter is committed to
serving lupus patients and their
loved ones in the 11 counties
they serve (Brevard, Broward,
Collier, Hendry, Indian River,
Martin, Miami-Dade, Monroe,
Okeechobee, Palm Beach and St.
Lucie). They understand the
isolation and fear lupus
patients often feel when they
are first diagnosed, and also
recognize the impact the disease
can have on family members and
friends. The SE Florida Chapter
is dedicated to improving the
quality of life for lupus
patients and their loved ones.
Sweet Leaf Tea is
made from all-natural,
superior-blend black and green
teas mixed with 100% pure cane
sugar or honey (Splenda for the
diet varieties) and
carbon-filtered water. Five of
their flavors are certified
organic by the USDA, and their
Green Tea line has more of the
antioxidant EGCG than any other
bottled tea on the market.
Sweet Leaf is
available nationwide at
convenience stores, restaurants,
supermarkets and specialty
grocery stores such as Whole
Foods Market, Wild Oats, Costco,
Kroger, The Fresh Market,
Sprouts, Central Market,
7-Eleven and Albertson's.
About Sweet
Leaf Tea
Based in Austin,
Texas, Sweet Leaf Tea was
founded in 1998 by Clayton
Christopher. Using his
grandmother's tried-and-true
iced-tea recipe, Clayton and his
best friend and business
partner, David Smith, brewed the
original batches of Sweet Leaf
Tea in pillowcases, using
crawfish pots as brew tanks.
Sweet Leaf Tea is
all-natural, made with real cane
sugar and is offered in ten
traditional iced-tea flavors:
The Organic Original Sweet Tea,
Diet Original Sweet Tea, Organic
Mint & Honey Green Tea, Diet
Mint & Honey Green Tea, Organic
Peach Sweet Tea, Diet Peach Tea,
Raspberry Sweet Tea, Lemon Lime
Unsweet Tea, Organic Very Berry
Hibiscus Tea, and Organic Half &
Half Lemonade Tea. Sweet Leaf
Tea can be purchased in the
original 16 ounce glass bottle,
a 64-oz PET bottle, and now the
12-ounce and 20-ounce plastic
bottles. Sweet Leaf Tea also has
a line of granny-inspired
all-natural, fresh-squeezed
lemonades: Organic Original
Lemonade, Organic Peach
Lemonade, and Organic Cherry
Limeade. For more information on
Sweet Leaf Tea and its products,
visit
www.sweetleaftea.com or call
Britt Monroe at (561) 998-1995.
About Walk for
Lupus Now
The Walk for
Lupus Now, scheduled for October
14 at Nova Southeastern
University in Davie and October
27 at Anchor Park in Delray,
both beginning at 8 AM. Proceeds
from the walks benefit the Lupus
Foundation of America, Southeast
Florida Chapter, a nonprofit
autonomous corporation
affiliated with the Lupus
Foundation of America. For more
information, call 800-339-0586
or visit
www.walkforlupusnowfl.com
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Lupus Foundation expands services in
Boca Raton - Delray Beach area
FROM
STAFF REPORTS
The Lupus Foundation of America,
Southeast Florida Chapter, is undergoing major
expansion to serve anyone affected by lupus.
The expansion includes larger offices
to allow for increased services, community resources
and a new staff position to more fully serve the
community.
The position of director of community relations was
created to bring greater awareness of the foundation
throughout the 11 counties that it serves. Kathleen
Laca, the former administrative director for the
foundation, has been promoted to the new position.
Laca has a strong commitment to lupus and will
continue to establish, coordinate and promote the
mission of outreach services for the Lupus
Foundation of America, Southeast Florida Chapter.
As part of the accessibility plan to better serve
the community, direct phone access to a Patient
Navigator will now be available Wednesdays from 9:30
a.m. to 12: 30 p.m. and Thursdays, 1 to 7 p.m.
Anyone who has questions regarding the disease,
needs names of doctors who specialize in treating
lupus or who are patients or family members will now
benefit from this focused, supportive addition.
“One in 185 people have been diagnosed with lupus
and right now, lupus is winning,” said Joshua
Estrin, executive director of the Lupus Foundation,
SE Florida Chapter. “Our growth will enable us to
better fight this debilitating disease and better
assist the community in their fight as well.”
The Lupus Foundation of America, Southeast Florida
Chapter is a not-for-profit autonomous corporation
affiliated with the Lupus Foundation of America.
This chapter, founded in 1978, serves Brevard,
Broward, Collier, Hendry, Indian River, Martin,
Miami/Dade, Monroe, Okeechobee, Palm Beach, and St.
Lucie counties.
The chapter is dedicated to improving
the lives of persons who suffer from lupus in South
Florida by providing counseling and referral,
support groups, professional and patient education
and training, outreach, public information, advocacy
and support of research.
For more information call
561-279-8606 or 800-339-0586 or visit
www.lupusfl.com. |
Fundraising Success 101407
October 14, 2007 Dr.
Stephen L. Goldstein is the host and
executive producer of “Fundraising
Success.” He is the author of 30 Days to
Successful Fundraising. For his weekly
fundraising column, go to
www.fundraisingguru.blogspot.com.
This week’s program: 1. CONSULTANT’S
CORNER: Beverly S. Bachrach, vice
president for university advancement and
marketing and communication at St.
Thomas University, Miami, FL, bbachrac@stu.edu:
how to run the most successful capital
campaign! 2. SPOTLIGHT ON A NONPROFIT &
ITS SUCCESS: The LUPUS Foundation of
America—Southeast Florida Chapter:
www.joshua_estrain@lupusfl.com 3.
Phil Cubeta, author of the blog
gifthub.org—on “extreme philanthropy”:
how donors can seize the opportunity to
make a difference beyond their wildest
imagination 4. Stephen Rockwell,
srockwell@mcsorg.org, of Management
Consulting Services: how nonprofits can
better use CRM to track their Web 2.0
strategies 5. “BLOG BEAT”: Peter
Panepento of The Chronicle of
Philanthropy,
www.philanthropy.com/giveandtake:
Follow link to podcast
http://wxelpodcasts.org/2007/10/16/fundraising-success-101407.aspx
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Working through a chronic illness.
More employees learn to cope with
debilitating
...
Send them to MSNBC.com columnist
Eve
Tahmincioglu,
PDF version click
here |
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December 12, 2007
Carol's Daughter Joins Forces with LFA to Bring Lupus to the
Forefront
November 29, 2007
Finally, It's a Lupus Diagnosis on House, M.D.
November 12, 2007
Dr. Jill Buyon Receives Evelyn V. Hess Lupus Research Award
October 11, 2007
Living Your Best Life - Lupus Now Magazine Offers Tips for a
Special Life
October 1, 2007
Stars Come Out for Butterflies Over Hollywood
September 26, 2007
LFA Awards an Additional $2 Million in New Research Grants
September 26, 2007
Cyclist Rides 9,000 Mile Lap Around the U.S. Spreading Awareness
September 25, 2007
Dept of Defense Support for Lupus Research Provides $5 Million
in New Funding
September 15, 2007
College Grads Pedaled Across the U.S. to Raise Funds for Lupus
August 14, 2007
LFA Issues a Call for Nominations for the 2007 Evelyn V. Hess
Award
August 1, 2007
LFA Announces 2007 Gina Finzi Memorial Student Summer Fellowship
Recipients
July 12, 2007
Morgan Dane Sterling Silver Jewelry Company to help raise
awareness / funds for LFA
June 27, 2007
Lupus Foundation of America statement on Results for Clinical
Study of CellCept® released by Aspreva Pharmaceutical Company
June 22, 2007
Tips for Surviving Time Off: Summer Issue of Lupus Now Magazine
Provides Vacation Inspiration
June 19, 2007
Remembering David Lytle
May 25, 2007
"World Walks for Lupus" May 25 in Shanghai, China
May 25, 2007
Department of Defense Provides Another $2 million for Lupus
Research
May 24, 2007
Lupus Organizations Hold Leadership Forum in Shanghai during
Eighth International Congress on Lupus
May 18, 2007
Inaugural "World Walks for Lupus" Set for May 25
May 14, 2007
Lupus REACH Amendments Introduced in the U.S.
Senate
May 10, 2007
Jennifer Hudson Thrills Audience at Fourth Annual Awards Gala
April 30, 2007
2006 Academy Award Winner Jennifer Hudson to
Entertain at Fourth Annual Awards Gala
April 5, 2007
Partnership for Prescription Assistance and LFA
Celebrate Second Annual Patient Assistance Day on April 5, 2007
March 28, 2007
Help LFA Secure Enactment of the Lupus REACH
Amendments (H.R. 1192) of 2007
March 14, 2007
LFA Releases Two RFAs: 2007 Novel Pilot Program
and 2007 Wallace H. Coulter Foundation
March 6, 2007
LFA Responds to Dr. Phil's Comments about Lupus
March 1, 2007
Congressman Kendrick Meek Introduces Landmark
Lupus Legislation
February 26, 2007
Leslie Hunt Advances to Top 20 on American Idol
February 26, 2007
Tomiko Fraser Hines Adds Activist to her Resume
February 20, 2007
American Idol Contestant with Lupus Is Top 24
Finalist
February 13, 2007
2007 Gina Finzi Memorial Student Summer
Fellowships Available
February 7, 2007
LFA Pleased with DoD's Funding for Lupus Research
February 6, 2007
"Live with Regis and Kelly" Shines Spotlight on
Lupus
January 23, 2006
Wall Street Journal Story Reports on Progress in
Lupus Drug Develop
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